Tuesday, June 3, 2008

Looong day.

Today was a really long day. Like I mentioned, I woke up early and got around. I had breakfast. I had lunch. I went to the playroom. I went down for physical therapy. I had to leave the playroom about 3 times for multiple reasons. We were playing skip-bo, the ultimate card game. Rawley came to visit mid game. After I finished up the game, we went back to my room. It was about 1 1/2 hours of talk and then I was feeling extremely tired. He left. He brought me a bouquet of flowers and some candy. It was nice of him, but unfortunately I really wasn't in the mood for any guests today.

Anyways... I was pulled from my playtime by both my doctor and my endocrine doctor. I am being taken off of my insulin pump. They are putting me on an insulin that includes both short acting and long acting. I will only need 2 shots a day, and I won't have to cover for high blood sugars. That sounds good to me. I think at this point I would rather have 2 shots a day than having to maintain my sugar and fiddle with my pump for every single thing I eat. I find that after seeing both points, both pump and no pump, I have a better idea of what I'm capable of keeping up. The doctor said that he thought 2 shots a day would work better for me because a pump is more work than any other option out there. I agreed. My endocrine doctor was from Iran, and he was awesome. He's new, and his accent is amazing.

My respiratory doctor said nothing different, except she expressed concern about the fact that my sinus headaches were not going away. By Friday I will know whether she wants to look at it deeper. She also talked to me about my sugars, but gave me an extra tidbit of information. She told me my HgbA1C, which is a test that tells you about your blood sugars over the past few months, was 12.5. To most, that doesn't make sense. This is a terrible number. It is supposed to be around 5-6. This means my sugar has been twice as high as it should be for nearly the past 3 months. Bad. She told me that my HgbA1C was the highest she had ever seen in any CF patient. Double bad. How embarrassing. I'm beginning to think this is the reason behind my inability to concentrate and comprehend anything as of late.

1 comment:

Matt Todd said...

Food for thought: if you are looking towards transplant in the future, poor compliance will have an effect in your eligibility when it comes time for evaluation. They look at how compliant you have been with your current/past meds to try to determine how compliant they think you will be with anti-rejection drugs post transplant. Also poor compliance with diabetes is not a good thing in their eyes because your sugars will get even higher and more difficult to control after transplant with the higher doses of steroids. Just something to think about if you think you might have transplant in your future. I know i got that lecture around evaluation time.