Lousy start to the day.

This morning did not start of well at all. At around 6 a.m. I was finishing up an IV med and I rolled over and knew instantly that I had popped the needle out of my port. Normally something like this would not bother me if it had not happened multiple times before. This port is the worst thing to happen to me in my treatment, I'm pretty sure. But I guess if this is as bad as it gets, it's not really so bad. It all seems more frustrating than it really is when I have to wake up after a small amount of sleep, I'm sure.

I decided that since my needle was out, I was going to take a shower while I had the chance, so at 6:15 this morning I was taking a shower. They let me sleep again until 8 because they knew I was tired and upset and the only med I had to get on time was an antibiotic at 9 because they had to draw levels of it from my port. One of my previous nurses, Sue, accessed my port with a bigger needle to see if it might be different, and she got it first shot. I love Sue. I was talking to her and during my field experience for school, I was thinking of working at St. Christopher's and she said she would definitely take me under her wing. She even said that she had a friend that hosted people all of the time so I might even be able to get hooked up with a place to stay. That is far down the line though. We'll have to see how it works out.

I have to say that this stay is opening my eyes. First the enzymes, then realizing the possibility behind my poor concentration may be my sugars. I should not have to just be realizing these things after nearly 20 years of my life. I'm killing myself. I need to start realizing what the consequences are for not complying, aside from the occasional lecture. Too many people care and worry about me for me to keep blowing things off because I think they aren't as important as other things. Everything is connected, and as a future nurse I know this, I just need to convince myself of it. I think this stay is doing a good job at it.

My respiratory doctor came in today with not a whole lot of new news, but she wants me to get a CT scan tomorrow to look at my sinuses. She changed the date because if my sinuses are full, she wants to have Friday to consult with ENT (ear, nose, throat) about clearing them out. I'm hoping it's really not that bad. I was actually surprised at how set on this they are this time.

I stopped my pump today. I'm starting shots again, just 2 a day, and it's going to take some getting used to again. Every time I get up from bed, I get about a foot away from the bed and stop in my tracks thinking I'm dragging my insulin pump behind me. I think ultimately this may have to be the way I go because it truly is less work. My sugars have been really high today, but it is the first time trying this insulin mixture, so they are just planning on increasing the dose until it suits my eating habits. Also, when I go home, they may have to adjust the dose as well because I won't eat as often. When I'm in school again, I'm sure they will have to adjust it again because I rarely eat during the day when I'm in school.

I talked to a guy in the playroom today named Rocky. Rocky works with musicians. He sings himself, and he's my new favorite person. He has worked with greats such as Elton John, Barbara Streisand, Billy Joel, and one that I was baffled to hear: Michael Buble. He was surprised he got a reaction out of me when he said Michael Buble because he thought no one my age would know and like him. I love him. He's a tenor and I believe he sounds like... I think they are called crooners? Yeah. He has an amazing voice. Anyways, this guy Rocky helped Michael record his album and was backup for him. AMAZING. Rocky called his wife as soon as he found out I liked him and his wife is burning me all of his CDs and I'm going to get them tomorrow. Exciting! He also said that if I was ever in town and he was having a concert, to get a hold of him and he would set it up so I could meet him. I think this is a long shot but I'm going to believe he's telling the truth and dream that one day I will actually do something like that. He also showed me a necklace he had (Rocky) and he said Michael gave it to him as a gift for helping him record backup. So technically I touched something that Michael Buble touched. Oh sweet!

If you would like to know who he is, just look him up on youtube. His song Home is one you would like as well as Everything.

Well, I'm off. Have to do my vest.