The rash continues!

So lately when I wake up in the morning, I've been getting really itchy arms and legs. It happens after I take 2 of my medications, so we have to figure out what is causing it. It started happening yesterday morning, and I thought the rash that was showing up was evidence of me scratching so hard, but it showed up on my knees this morning before I started itching, so it is not from scratching.

All day yesterday and the night before, I did not get IV meds. The nurse set up the IV setup incorrectly and all of my medications were backing up into the saline bag. That's not good. So not only did I miss a whole day of antibiotics, but whatever bit of antibiotics I did get were all mixed together, which is what they try not to do. Maybe that is the reason that I'm getting a rash.

Today I do PFT's and then I will see how my breathing is coming along. I'm starting to think that maybe the disease is starting to take it's course, in a way. The point of the disease is to progressively lose lung function. Maybe this is my new healthy. If it is, then it's going to take some getting used to.

I talked to my friend Kate last night on the phone. She just recently got in a big car accident and broke her leg. It wasn't her driving, it was her sister. But it wasn't their fault. The guy that hit them was going 60mph in a 25mph zone. She also has CF, and after she had her surgeries, she had to get transferred from her hospital at home to a children's hospital in Pittsburgh. What happened was all the pain meds were slowing her respirations so badly that her pulsox was dropping to extreme lows and she couldn't breathe. When she told her nurse at the hospital back home, the nurse proceeded to tell her that she was just saying she couldn't breathe for attention. What is the world coming to these days?

I'll apologize now if I don't write as much. The medication I'm getting to help my stomach makes me so incredibly shaky that it makes it difficult to type. Everything is going pretty well so far aside from the antibiotic mishap. My sugars are under control for the most part even with eating what I want in moderation. I am proof that you don't have to cut out what you love in order to keep yourself healthy and your sugars under control.